The International Children’s Anophthalmia & Microphthalmia Network (ican), a voluntary not-for-profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia (eyes that are abnormally small, completely absent, or consist only of vestigial portions).
Etablished in 1993, ican also enables parents with affected children to share personal experiences, information, and support; take advantage of the Network’s database of physicians and educational resources; and learn about ongoing research and medical issues. ican provides referrals to genetic counseling, support groups, and other services and promotes professional and patient education. It provides a variety of educational and support materials through its computer database, directory, and regular newsletter.
For parents who want additional information ASAP:
contact ican
1-800-580-ican
or
e-mail info@anophthalmia.org